I was finally able to speak with my oncologist today. He hadn’t been told what had happened to me until Friday and then he was rounding at the hospital and couldn’t call me. The next time he isn’t there when I have some other emergency, I will insist they get him on the phone. So days of worry and speculation are not quite over but we’re felling much better. It’s alright if I have the first complete chemo treatment at eight weeks and hopefully that will be the case. And the incomplete treatment I had wasn’t worthless. We still don’t know what happened to me or what we will do to change the outcome but Sloan-Kettering will weigh in and Wednesday we’ll come to some conclusion. Anything we chose to do though no matter how sure we are about what happened will be like trial and error. I’m going to push to be observed (which may mean hospitalized) so if something happens again we’re more prepared to find out what it is, because, I do expect it will happen again. Just like everything with this cancer so far, only time will tell.
I still have a long road ahead and I just need to wait for it all to get started. This coming Tuesday, I’ll be in New York at Sloan Kettering getting a second opinion on my diagnosis and treatment plan. A very big thank you goes out to Cary for setting this up for me. Cary will even be there on the phone! Hopefully they will confirm what my doctors have already said which is good news overall. Otherwise who knows what will happen. more…
Two topics today: 1) progress report 2) where did this title come from?
So if all goes according to plan (and I don’t die) my portacath will be installed the week of September 1st and my chemotherapy will begin on September 9th. Yesterday, the last 6 staples were removed from my incision and today I gave the blood for my genetic testing as well as discussed my course of treatment with my oncologist. I want to start exercising which for someone in my present condition consists of walking, so that will start tomorrow. My focus needs to be on healing. more…
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