I have not had spasm this session. I was completely expecting at around midnight last night that I would be having a spasm and a very severe one - not something I was looking forward to. After sending the kids to bed early Christina and I camped out in the living room to wait it out. We tried not to look at the clock and I tried to distract myself with the internet while Christina worked and watched TV. One of the obsessions I nourished was my new found love of Regina Spektor - WOW! I wasn’t so surprised that I liked her once I found out that she is originally from Russia and spent the second half of her childhood in Riverdale, BX. She’s one of the few artists I actually care to listen to their lyrics. She’s quirky, funny, emotional, raw, poetic, irreverent, playful, and incredibly talented. A good introduction is this interview with Regina on CBS’s Sunday Morning. I must have watched between twenty to thirty videos before I needed to change and we still hadn’t hit midnight.
So to further distract myself, next I started reading out loud to Christina the contents of
A Practical Guide to Vagabonding and Long Term Travel (Part 1): Taking the Leap, then parts 2, 3, and 4 which put her right to sleep but also brought me through an uneventful midnight.
There really are hardly the words that can express how pleased I am that my doctors were able to figure this very rare circumstance out in as little time as they have. From where I was to where I am, from thinking I could not complete a therapy that is life-saving to being able to complete it without the complication of severe and unpredictable, unexpected pain is a miracle.
So I am hopeful this temporary vasculitis is now behind me and ahead of me lie five-and-a-half-months of chemotherapy so still a long road ahead but there is a light at the end.
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Ray…I’m so glad that this treatment was much easier on you!! Am sending lots of love from FL and I hope to see you soon!
Comment by Amanda — 2008.10.16 @ 5:25 pm